20th Anniversary of May 12th Awareness Day for ME/CFS, FM & MCS
October 2, 2011
**20th Anniversary of May 12th Awareness Day for ME/CFS, FM, MCS and GWS**
It is the dream of our patient community to finally be taken seriously by friends, family and people in our local communities. May 12th Awareness day is a chance for the 700000+ Canadians suffering from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM), Multiple Chemical Sensitivities (MCS) and Gulf War Syndrome(GWS) to be heard! These illnesses are real; the people are real; and they need help!
These are chronic and severely disabling illnesses. They are as disabling as MS and are more prevalent in Canada than breast cancer, MS and AIDS combined! People are frequently bedridden and become isolated from friends and family – invisible in their own communities.
Dr Nancy Klimas, an expert in both ME/CFS and AIDS, was quoted as saying "A CFS patient feels the same or worse than congestive heart failure. The same or worse than late stage AIDS. If I had to choose between the two illnesses I would rather have H.I.V. "
These illnesses do not discriminate. All races, men and women, adults and **children** can be afflicted. It is particularly devastating when a child is forced to cope with such a disabling illness.
We are on a mission to bring awareness for this patient community.
To date our volunteer efforts have been handcuffed due to minimal funds as many members of our community are in financial distress. The illness also limits their ability to fund raise the substantial amounts required to mount a large scale awareness event.
This contest gives us a chance to fund a nation wide awareness campaign on May 12, 2012, the 20th Anniversary of May 12th Awareness Day. It will also define Canada as a world leader in raising awareness as this day is also an international event. It will not only benefit 700000+ Canadians but it will indirectly benefit the 20 million people that suffer world wide.
We will use the funds to hold events in as many communities across Canada as possible and develop a website to unite them. We’ll sport t-shirts, carry signs and have engaging speakers in each community. Each event will have it’s own venue but will share elements common to all. We'll communicate with all levels of government. We’ll also be able to advertise in national and local papers, on TV and radio to unite the larger community across Canada.
With awareness will come action! Our community is desperately in need of treatment facilities and funding is required to support our scientists. A successful May 12th will bring many rewards for years to come.
Aviva’s gift will help to unite our national and local communities and make a difference to the lives of many Canadians.
To quote Helen Keller – “Alone we can do so little; together we can do so much."